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IN 2023, the Cystic Fibrosis Foundation made real progress toward our mission to cure CF and provide all people with CF the opportunity to lead long, fulfilling lives. We helped make it possible for the …
CF Foundation-accredited care centers play an important role in research. They collect information on the health status of their patients with CF who agree to participate, and report that data to the CF …
Registry data inform continued quality improvements in treatment and specialized care. Each year, the CF Foundation analyzes and shares the data with the CF community through the Patient Registry …
In 2023, the Cystic Fibrosis Foundation celebrated continued achievements and milestones toward our mission of curing CF. With your support, we are transforming what it means to live with cystic fibrosis.
Over the last 20 years, the percentage of people with CF who are overweight or obese has increased — from 10% to 21% among children with CF and from 18% to 42% among adults.
The CF Foundation recently released their annual reports drawn from the analysis of the data collected in the CF Patient Registry. There is a lot of information – and hope – presented in the reports.
We continue to learn about the CF population through our Patient Registry — representing about 80% of people with CF in the U.S. — including health status and their lives beyond CF.
The Cystic Fibrosis Foundation, a 501 (c) (3) nonprofit organization, has unrestricted financial reserves of about 11 times its 2025 operating budget. These reserves are largely a result of the Foundation's …
The Annual Data Report is based on data entered in the CF Foundation Patient Registry through our online portal, PortCF©. Data are entered by teams of dedicated health professionals in our …
CF Foundation-accredited care centers play an important role in research. They collect information on the health status of their patients with CF who agree to participate, and report that data to the CF …
This report offers key insights from last year’s CF Foundation Patient Registry data. The Registry includes data from people with CF in the United States who visit CF care centers and agree to …
Oct 24, 2018 · Cystic fibrosis (CF) is an autosomal recessive genetic disorder resulting from a mutation in the gene which encodes a cellular transmembrane protein channel known as the CF …
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